Resources
Childhood Brain Tumor
www.childhoodbraintumor.org
Just One More Day…is committed to providing information and support for families affected by diffuse intrinsic pontine glioma, promoting awareness, and funding research for a cure.
www.justonemoreday.org
Web MD - WebMD provides valuable health information, tools for managing your health, and support to those who seek information.
American Brain Tumor Assocation -
Central Brain Tumor Registery - The Central Brain Tumor Registry of the United States, CBTRUS, is a not-for-profit corporation committed to providing a resource for gathering and disseminating current epidemiologic data on all primary brain tumors, benign and malignant, for the purposes of accurately describing their incidence and survival patterns, evaluating diagnosis and treatment, facilitating etiologic studies, establishing awareness of the disease, and ultimately, for the prevention of all brain tumors.
I Could Be Your Child
Google DIPG Support Group - this is for DIPG parents by DIPG parents and supporters. It is private group and users would need to be approved before they able to participate in this group. It is made up of over 100 members and gets over 800 posts on a monthly basis.